Oxigen Sensor

2014-05-07  Oxygen Sensor (1)

 

Some time ago one of my cars was hard to start, and when running, it did it rough. After a little investigation I discovered the problem was the oxygen sensor, which was sending the wrong signals to the computer, so the computer, due to receiving the wrong information, was taking the wrong decisions and sending the wrong signals to the different components of the engine, thus forcing it to run rough. The car was suffering from automotive Fibromyalgia!

The same thing is happening in my body. The nervous system is sending the wrong signals to the brain, so the brain is making the wrong decisions about how the body feels and run.

 

2014-05-07  Oxygen Sensor (2)

 

Unfortunately I cannot just take apart and replace the nervous system like I did with the oxygen sensor, so I have to take pills that change the functions of the nervous system to a more acceptable level, just like if I had to add an electronic device to the oxygen sensor in order to change the signals it sends to a more acceptable margin, that can be understood and properly used by the computer in the car, so to keep the old oxygen sensor in place.

If I had to use an electronic device to change the signals from the old oxygen sensor, the engine would run better, but never like it would with a brand new oxygen sensor, so in the same way, the body runs better with the use of the pills, but never like it used to when the nervous system was still working properly.

Such a pity we still cannot replace any body component like we can do with our cars!

Raul

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Facebook Account

2014-05-03  Facebook Account

A couple of days ago I finally opened a Facebook account!

For many years I resisted the idea of getting into the “club”, mostly because to me it seemed the big majority of people use their Facebook account to talk like in a party, just chatting and making remarks to whatever was presented in somebody else’s page.

The only reason I finally decided to open an account was to connect with a specific person living back in my country. We were friends when in High School there, and he became the only friend I ever had. We lost contact about 20 years ago, and just found each other about a year ago, through my wife’s Facebook page.

It was very difficult to talk on the phone because of the expenses, and he doesn’t have a computer and internet connection, so have to go once a month to an internet café to post in his Facebook page and send messages

So the only reason I would have to open a Facebook account was to connect with one person, which seemed to me like to much for so little use of the account; so thinking about it, I decided to create an account that would be related to this blog, so my Facebook page would have more than just one reason to exist.

And it has been challenging!!

I knew I was bad with computers and newer communication technologies, but never thought I was so bad! When trying to use my account, it feels more like a wild horse, doing whatever it wants to do, rather than doing what I want it to do.

Pictures posted go any place they like; text does the same, and only the main pictures at the top have been fairly easy to add.

I guess it’ll take a while to figure out the whole thing; or better said: Understand it enough to get it to do most of what I want. But so far I’m already getting tired of it! It makes so many questions! And acts like someone you cannot trust; as soon as you write something, it screams it to the whole world! Oh well!

Anyway, if you want to take a look, just search for my name (Raul Ojeda), and the green alien logo will be there for you to know you are in the right place.

Now I have to find ways to connect that account with this blog (after finding the use of that) and I’ll have then a justification other than to connect with one specific person.

Raul

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Breakfast of OLD Champions

2014-04-30  Breakfast of OLD Champions (1)

 

Every morning the routine of having a set of pills that supposes to help. Breakfast of OLD champions! Reminders of age plus the accumulation of physical deterioration, led by the latest syndrome acquired. You got it…you keep it! That’s what modern medicine said. No cure but just symptoms management for eternity, which in reality means pills…lots of them!

When I was a child I used to play with the many accumulated empty bottles of medicine that was said kept me alive. Now I am accumulating more empty bottles to continue the collection or the life trend, who knows. I guess we all are collectors one way or another!

Yesterday I bought a used press bench with weights and all. The weights have surface rust that I have to polish, to then paint them to a new look, like if I just bought them new. I am not a gym rat -never been- but I’m fighting this thing. The intention to trade morning pills for morning gym to reach a point were life looks normal again.

 

2014-04-30  Breakfast of OLD Champions (2)

 

Just the sight of so many medicine bottles makes me sick! I will be classifying; one by one getting rid of them to keep just the essentials…those the body cannot be without. I will be listening to the body, not to the doctors. They know medicine, not my body. I am the rider of the assigned horse of life. I will learn to take care of the horse, as it is supposed to be, so we can travel the land once again; reaching for the setting sun until we loose the race, and darkness becomes the end.

Raul

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Blog Changes

2014-04-26  Blog Changes

From time to time we have to stop to look back and where we are, so to adjust accordingly; I guess this is one of those moments. I’ve decided to change the general direction of this blog, and with it, the general appearance and features it has.

So far I’ve had it set as a social blog; a place to meet and talk. This has been reflected by having the possibility of receiving comments and showing who is doing the comment; while also having a Blogroll to add the blogs of those who visit me.

As you can see, all those features are gone. Instead, now the writing space has two thirds of the width in the screen instead of the half it used to have. This means more room for writing and communicating, and less room for socializing.

The main reason to do that is the intention of dedicating more time to write. This blog will be a place to post writing; and to socialize or talk about the posts and other things I finally opened a Facebook account, which I’m planning to connect with this blog (don’t ask me how, I’m still trying to understand how things work in the cyber world).

The Facebook account is under Raul Ojeda (Alien Ghost); if you want to search for me just write my name, and the green alien logo will be there, so you know is me, and we can be friends there. I set it so there should be no chat in the main page, which means, like this blog, if you want to contact me, you can send me a message on Facebook.

I know it might sound like I’m trying to keep people away, and just lock myself alone to simply write and never socialize, but in reality it is more about creating a one way flow, were I present the different perspective that is this parallel Aspie universe, and anybody wanting to comment or talk still can do it through a message in Facebook, or a note in the Contact Form.

Let’s face it with honesty, most small bloggers (like me) have to spend a lot of time answering comments and visiting other blogs to comment in return, reducing greatly the available time to write valuable content. Have you been in the situation of having to write whatever just to keep the posting schedule? In those blogs where people post an article from somewhere else, or videos or funny pictures, the job is fast, but in this blog, where I try to post observations with analysis, it takes a lot longer.

I chose a more complex kind of blog, were observation analysis and conclusions (which is the base of understanding human behavior) are the main reason for the existence of this blog, and I intend to keep it that way; so having it as a one way flow seems to be the most appropriate way to go at this time.

Hope you like the new theme used, and the simplicity in colors, especially in the reading area, which I hope will make it easy in the eyes of the reader. If you have any suggestion, idea, or comment, please feel free to use the Contact Form, and we can communicate.

Raul

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Sickness (III)

2014-04-25  Sickness (III)

What happened is that the new symptoms went away, and the old ones came back! For a brief moment I thought I was back to square one, but then I remembered my wife’s acquaintance and that she mentioned Lyrica, not Duloxetine. She has high school diploma and no training of any kind in the medical field, but so far she was the only one who found the problem!! No doctor with sophisticated equipment and lots of tests has been able to find the problem, so this lady could very well be right also in what should be the correct medicine!!

So I asked for another appointment with the doctor, and in the meantime I went back to Google to learn more about the sickness. One of the things that didn’t fit previously in my findings about Fibromyalgia is that it is considered a sickness triggered by a deep depressive state in the patient; but I didn’t have depression!!

Reading more I learned that about 90 percent of the patients that acquire Fibromyalgia is because of a deep depressive state, which makes the subconscious brain trigger problems in the nervous systems, which is the responsible for all the symptoms due to be working in a new, different way. But about ten percent of patient with Fibromyalgia acquire it because, basically, the nervous system fails by itself, and not because of signals from the brain due to a depressive state.

In the 90 percent who gets it because of depression, the best medicine is Duloxetine, which is a medicine to treat depression; but in the 10 percent that gets it because of a failure of the nervous system without depression, the medicine is Lyrica, which is a medicine to treat the way the nervous system works, without interacting with the brain.

So the lady from the front desk was right! I didn’t have depression when I got sick. I became depressive because of all the consequences of the sickness, so my problem was a deteriorated nervous system and not a depressive brain, so I should take Lyrica instead of Duloxetine.

With this, at the doctor’s appointment I insisted in getting a prescription of Lyrica, and a letter from her explaining that the diagnosis was Fibromyalgia and that I was in treatment and still not able to work. I bought the medicines and started to take them, while also gave the letter to my employer, so they would know, they would believe me, and I could be able to get short term disability, to at least compensate in part my lack of paychecks (they pay 66%).

I’m still waiting for a resolution from the company that provides short term (The Hartford), so after almost four months I’m still without income, but at least after trying Lyrica for ten days, the results were awesome! I recovered about 80 percent of my energy; the pain was reduced to about ten percent, and was only a moving pain (one hour here, then one hour there, etc); the original dizziness was almost gone, and finally I was able to sleep like 4-5 hours a day!

Before I couldn’t walk without holding myself with my hands; with Lyrica I could run the stairs up, going two steps at the time! Before it was very hard to hold a knife to spread butter in a piece of bread, while then I was able to even chop firewood with an axe! It was just wonderful to know that I could have a normal life again; I could retake my job at some point and even retain my original plans for the future, because I could recover, at least to 80 percent of what I used to be!

There was a trade off though; at one hand, I will have to take Lyrica for the rest of my life, which means two pills a day, at a rate of about $ 300 a month! And also there are some side effects from Lyrica. Approximately after one hour of taking the medicine I got dizzy like if I was in drugs (I know is like drugs because I tried marijuana like 30 years ago, and is the same feeling), and it lasted for about 4-6 hours, then about 1 hour later I had to take the other pill, which brought the dizziness again.

The other thing is that the pain was not completely gone, and I had a slight pain that moved all around the body, like one hour in my hands, then one hour in my shoulders, then one hour in my knees, then one hour in my hips, etc. And that moving pain didn’t go away, ever, day or night.

And the last thing is that my energy was back at about 80 percent; meaning by that, I could do heavy work, like chopping wood, but I did it panting, and after about ten minutes I had to stop and rest for about 30 minutes to recover. If it was light work, like sweeping the floor, I didn’t have to stop to recover. It wasn’t like I used to be…it was less, but at least with some little trades here and there; maybe the help of more machines to do things, and a positive mentality, at least I still could have my life back and didn’t need to forget my original projects for the years to come!!

So in the last appointment with the doctor I got a one month prescription of Lyrica at 300mg per dose, twice a day, and after a month I’ll have to go to another appointment to see if everything goes fine; if so, she will give me a three months prescription, and after than, maybe a year prescription.

Financially I’ve been complicated. I blew out all the savings (a couple of thousands) and even got to the point of living in borrowed money from my son, but tomorrow (26th) I’ll be back to work, so that would bring back normal paychecks in about a month, and if the company providing short term disability pays, then I even will be able to pay back to my son the money I borrowed from him! (So far another thousand).

A couple of days ago my wife an I went to gave a present to her acquaintance, the lady who told us my sickness must be Fibromyalgia and that the right medicine should be Lyrica. She was the only one who gave the right diagnosis, and with that, she saved me from going from doctor to doctor and test after test, probably for months (if not years!), and from taking the wrong treatment for Arthritis and Lupus instead of Fibromyalgia, which probably meant I would be taking my own life for no real reason, but just because of the incompetence of doctors who are more worried about making big money than helping people.

In future posts I’ll tell you about the reactions of my body when back to work, how I was testing the medicine (Lyrica), in a way that no doctor would have ever allowed, and even got my wife worried, and also will tell you about how close we are between my son and me, and why I’m so proud about him for his reactions in this past couple of months when I was so sick.

Raul

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