What happened is that the new symptoms went away, and the old ones came back! For a brief moment I thought I was back to square one, but then I remembered my wife’s acquaintance and that she mentioned Lyrica, not Duloxetine. She has high school diploma and no training of any kind in the medical field, but so far she was the only one who found the problem!! No doctor with sophisticated equipment and lots of tests has been able to find the problem, so this lady could very well be right also in what should be the correct medicine!!
So I asked for another appointment with the doctor, and in the meantime I went back to Google to learn more about the sickness. One of the things that didn’t fit previously in my findings about Fibromyalgia is that it is considered a sickness triggered by a deep depressive state in the patient; but I didn’t have depression!!
Reading more I learned that about 90 percent of the patients that acquire Fibromyalgia is because of a deep depressive state, which makes the subconscious brain trigger problems in the nervous systems, which is the responsible for all the symptoms due to be working in a new, different way. But about ten percent of patient with Fibromyalgia acquire it because, basically, the nervous system fails by itself, and not because of signals from the brain due to a depressive state.
In the 90 percent who gets it because of depression, the best medicine is Duloxetine, which is a medicine to treat depression; but in the 10 percent that gets it because of a failure of the nervous system without depression, the medicine is Lyrica, which is a medicine to treat the way the nervous system works, without interacting with the brain.
So the lady from the front desk was right! I didn’t have depression when I got sick. I became depressive because of all the consequences of the sickness, so my problem was a deteriorated nervous system and not a depressive brain, so I should take Lyrica instead of Duloxetine.
With this, at the doctor’s appointment I insisted in getting a prescription of Lyrica, and a letter from her explaining that the diagnosis was Fibromyalgia and that I was in treatment and still not able to work. I bought the medicines and started to take them, while also gave the letter to my employer, so they would know, they would believe me, and I could be able to get short term disability, to at least compensate in part my lack of paychecks (they pay 66%).
I’m still waiting for a resolution from the company that provides short term (The Hartford), so after almost four months I’m still without income, but at least after trying Lyrica for ten days, the results were awesome! I recovered about 80 percent of my energy; the pain was reduced to about ten percent, and was only a moving pain (one hour here, then one hour there, etc); the original dizziness was almost gone, and finally I was able to sleep like 4-5 hours a day!
Before I couldn’t walk without holding myself with my hands; with Lyrica I could run the stairs up, going two steps at the time! Before it was very hard to hold a knife to spread butter in a piece of bread, while then I was able to even chop firewood with an axe! It was just wonderful to know that I could have a normal life again; I could retake my job at some point and even retain my original plans for the future, because I could recover, at least to 80 percent of what I used to be!
There was a trade off though; at one hand, I will have to take Lyrica for the rest of my life, which means two pills a day, at a rate of about $ 300 a month! And also there are some side effects from Lyrica. Approximately after one hour of taking the medicine I got dizzy like if I was in drugs (I know is like drugs because I tried marijuana like 30 years ago, and is the same feeling), and it lasted for about 4-6 hours, then about 1 hour later I had to take the other pill, which brought the dizziness again.
The other thing is that the pain was not completely gone, and I had a slight pain that moved all around the body, like one hour in my hands, then one hour in my shoulders, then one hour in my knees, then one hour in my hips, etc. And that moving pain didn’t go away, ever, day or night.
And the last thing is that my energy was back at about 80 percent; meaning by that, I could do heavy work, like chopping wood, but I did it panting, and after about ten minutes I had to stop and rest for about 30 minutes to recover. If it was light work, like sweeping the floor, I didn’t have to stop to recover. It wasn’t like I used to be…it was less, but at least with some little trades here and there; maybe the help of more machines to do things, and a positive mentality, at least I still could have my life back and didn’t need to forget my original projects for the years to come!!
So in the last appointment with the doctor I got a one month prescription of Lyrica at 300mg per dose, twice a day, and after a month I’ll have to go to another appointment to see if everything goes fine; if so, she will give me a three months prescription, and after than, maybe a year prescription.
Financially I’ve been complicated. I blew out all the savings (a couple of thousands) and even got to the point of living in borrowed money from my son, but tomorrow (26th) I’ll be back to work, so that would bring back normal paychecks in about a month, and if the company providing short term disability pays, then I even will be able to pay back to my son the money I borrowed from him! (So far another thousand).
A couple of days ago my wife an I went to gave a present to her acquaintance, the lady who told us my sickness must be Fibromyalgia and that the right medicine should be Lyrica. She was the only one who gave the right diagnosis, and with that, she saved me from going from doctor to doctor and test after test, probably for months (if not years!), and from taking the wrong treatment for Arthritis and Lupus instead of Fibromyalgia, which probably meant I would be taking my own life for no real reason, but just because of the incompetence of doctors who are more worried about making big money than helping people.
In future posts I’ll tell you about the reactions of my body when back to work, how I was testing the medicine (Lyrica), in a way that no doctor would have ever allowed, and even got my wife worried, and also will tell you about how close we are between my son and me, and why I’m so proud about him for his reactions in this past couple of months when I was so sick.